First, I have to mention I did not post a new blog yesterday. I was too exhausted to do so. But today am feeling much better after a nice afternoon nap. It is wonderful to be rejuvenated by a nap and thankfully my family gave me the time to do so. Thank you to my wonderful husband and beautiful son.
Today I am excited to be able to post an article that appeared in yesterday's Daily News Newspaper. This all came about when I was asked to write a letter thanking some wonderful people and organizations who supported the Muscular Dystrophy Association and families affected by neuromuscular disease. I was happy to do so because I am grateful for the money that is raised that will 'I hope and pray' help to find a cure for this 100% fatal genetic disease and the #1 killer of children. Parents of today that have children with neuromuscular disease are hoping and praying for this cure now. I very much want my son to not have to face the future that we know he is destined for with having Muscular Dystrophy. For this generation of boys, we are running out of time, and it must be stopped and time is of the essence. However, we need your help, not only to raise awareness, but also to help raise money that will continue the all important work of the researchers who are working to make a cure possible. Please contact me by email at testingyourfaith@yahoo.com for further information of how to help. Our family thanks you.
Here is the article: http://www.dailynews.com/opinions/ci_14941054
As promised in Thursday's blog, I wanted to bring up mention of one of the many unsung heroes I have come to appreciate. This will be the first of several I will discuss over the next few days or weeks, however long it takes to get it done. This boys name is Darius and his laugh and love of life is infectious. Darius took a road trip from Atlanta to California for a very special purpose at the age of 15 therefore calling his documentary "Darius Goes West". Darius wanted to spread awareness of Muscular Dystrophy to the younger generation that have no clue who Jerry Lewis is and what he has done for the Muscular Dystrophy families. He tries to do that by setting out to get on the MTV show "Pimp My Ride" that millions of younger viewers watch. His efforts are worth watching. What struck me most about this movie is Darius' attitude about life and the community that rallies around him, as well as his crew of men that help him along on his journey. The bond is incredible to watch and no where else will you see grown men cry to be so heartfelt.
My hope for Jared and many other boys like him, is that they will have friends that will rally around just like for Darius. What I find so ironic in that hope, is that many boys just like my son Jared are being verbally attacked, left behind or ignored because of their disease. This conversation has been happening on Facebook with us Muscular Dystrophy Moms because we are having to pick up the shattered pieces from our son's lives. We are venting to each other and trying to figure more positive approaches at school and how to teach compassion so our sons don't keep reminding us how much they hate school or want to be home schooled. Our boys have every right to attend public school in safety and just like everyone else. It is time we raised much more awareness for Muscular Dystrophy than in the past. It is time to find a cure. Please take the time to watch "Darius Goes West" with your family and spread the message. Darius will warm your heart and compel you to "Pay It Forward". Look for the "Pay It Forward" area on the link to watch the entire movie for free and then get back to me about it: http://www.dariusgoeswest.org/
Thank you for your support.
Kari
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